Tag: Stephanie Meredith
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Remote Staff Spotlight: Stephanie Meredith
By Bill Mazzoleni Stephanie Meredith is HDI’s Information Services Director. She has worked at HDI for five years. What brought her to HDI is her and Harold Kleinert’s work on resources about Down syndrome for new and expectant parents. They met in 2007 at a conference about setting the research agenda for Down syndrome at…
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Updated “Understanding a Down Syndrome Diagnosis” book Available Now
The nationally recommended book for new and expectant parents learning about Down syndrome, Understanding a Down Syndrome Diagnosis, from the Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute, has been recently updated with unprecedented collaboration from leading experts across the nation to improve the diagnosis experience for families.
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Research Brief Spring 2017
Having a Son or Daughter with Jacobsen Syndrome/11q Deletion Syndrome: Perspectives of Parents by Stephanie Meredith, Anthony Lobianco & Harold Kleinert Jacobsen syndrome (JS) is a rare genetic condition that often causes intellectual disabilities and health issues and has recently been added to various cell-free DNA prenatal screening tests. This condition often includes multiple physical features, a…
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AUCD 2016 Conference Report from HDI
HDI staff recently attended the Association of University Centers on Disabilities 2016 Conference in December and also actively contributed to the conference through sessions, posters, and increased attendance by trainees. Dr. Harold Kleinert contributed to a panel on inclusive education and participated in a poster about “Building Capacity and Vision Among Faith Communities, Seminaries, and Disability…
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HDI Shares Importance of Giving Updated Information With Genetic Diagnoses
When parents first hear the news that their child has a genetic condition, they want support and accurate and up-to-date information right away. They fundamentally want to know what life is like for people living with those conditions. However, sometimes they may receive outdated information or resources that leave them frustrated and confused. Parents may…
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New Online Learning Center Available through HDI
Virtual training at the Human Development Institute has a new look as a new online learning center is available for interdisciplinary online training. HDI is using a new learning platform to host free and low cost online training. The new online learning center meets requirements for accessibility, as well as responsive to the size of the device…
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HDI’s National Center for Prenatal and Postnatal Resources Presenting at Seminar in Japan
On June 3-4, 2016, Stephanie Meredith, Medical Outreach Director of the Human Development Institute’s (HDI) Lettercase Program/National Center for Prenatal and Postnatal Resources at the University of Kentucky, will be speaking at a seminar in Japan for the Yokohama Project—an advocacy group in Yokohama City led by community leaders and disability advocates. Ms. Meredith is…
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“Welcoming a Newborn with Down Syndrome” Book Now Available in Spanish Thanks to the Joseph P. Kennedy, Jr. Foundation
The new parent guide, “Welcoming a Newborn with Down Syndrome” by Nancy McCrea Iannone and HDI’s Stephanie Meredith, has just been released in Spanish thanks to a generous grant from the Joseph P. Kennedy, Jr. Foundation. The newborn book published last year was specifically written for new parents during the first months after the birth of their baby…