Tag: Jacobsen syndrome
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Research Brief Spring 2017
Having a Son or Daughter with Jacobsen Syndrome/11q Deletion Syndrome: Perspectives of Parents by Stephanie Meredith, Anthony Lobianco & Harold Kleinert Jacobsen syndrome (JS) is a rare genetic condition that often causes […]
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HDI Shares Importance of Giving Updated Information With Genetic Diagnoses
When parents first hear the news that their child has a genetic condition, they want support and accurate and up-to-date information right away. They fundamentally want to know what life […]