The University of Kentucky Human Development Institute Digital Storytelling Initiative highlights the stories and lived experiences of people with disabilities. By recording and collecting stories, the contributions of people with disabilities and their families are amplified to help shape the narrative of how disability impacts society. These stories can be found at HDI Voices, a website that currently includes stories about employment, health, and COVID-19.
The work continues! Do you have a story to tell? HDI staff Patti Logsdon, Adam Potter, and Patti Singleton want to work with you. You can share your story or work with others to record their story in writing, on audio (podcast), or video. If you are interested in adding to the HDI story collection, fill out the form at https://bit.ly/TellMyStoryHDI or contact Patti Logsdon at firstname.lastname@example.org or 859 218-1338.
Visit voices.hdiuky.net and share with others who want to improve their work with people with disabilities and their families. This project was made by possible by a HDI Fund for Excellence proposal.
The Kentucky Inclusive Health Collaborative at the UK Human Development Institute is excited to partner with the Adaptive Martial Arts Association (AMAA) to develop training modules for a web-based certificate course for instructors to increase capacity for adaptive martial arts in their academies. These modules will raise awareness about disabilities, promote the use of universal design, and share successful implementation strategies to support martial artists of all abilities. The creation of this course will help fulfill the AMAA’s mission of expanding opportunities and inclusion for people with disabilities through education, support, and promotion of health and physical fitness in martial arts.
Contact Darrell.Mattingly@uky.edu for more information.
Natalie Littlefield, the community health director for the Lexington Division of the American Heart Association (AHA) has partnered with the Kentucky’s CDC State Disability & Health Program called Project CHEER (Community Health Education & Exercise Resources) to co-author a presentation titled “Promotion of Successful Inclusion of Individuals with Disabilities Through Universal Design in American Heart Association’s Health Programs,” that will be presented at the 2019 American Public Health Association’s (APHA) annual meeting and expo, November 2 – 6 in Philadelphia.
Presenting with Littlefield from Project CHEER will be Lindsey Mullis, Megan Jaspersen, and Danielle Augustin of the University of Kentucky Human Development Institute.
The presentation, scheduled for 3 pm EST on Monday, November 4, will review the community collaborations, universal design strategies in health programming, and pilot results of an inclusive offering of the AHA’s Mobile Kitchen series. Future directions for broadening efforts and sustainability will be explained. Additionally, presenters will briefly discuss adaptation and implementation of a second inclusive pilot of AHA’s Healthy for Life program with implementation late spring 2019. “This is such an important partnership with the AHA because we want to promote the broad accessibility of great health services to individuals who are often at the highest risk for being unhealthy and underserved, and this presentation provides us the opportunity to encourage other programs to do the same.” Lindsey Mullis, Inclusive Health Director, Project CHEER. Continue reading
Adherence of cell-free DNA noninvasive prenatal screens to ACMG recommendations in providing patient education resources
Research Brief by Stephanie Meredith & Mark Leach
Cell-free DNA prenatal screens (also known as NIPS or NIPT) were released in the US by commercial labs eight years ago as screening tests for conditions such as Down syndrome, Trisomy 18, and Trisomy 13. When these screens were originally released in 2011, they were largely covered in the media as non-invasive prenatal diagnostic tests that could detect conditions with a simple blood draw. However, even though cell-free DNA noninvasive prenatal screens are more sensitive than traditional screening tests, there are still chances for false positives and, less often, false negatives. Therefore, they are considered screening tests and are not actually diagnostic (Mozersky, 2012). The introduction of this new technology and some of the confusion surrounding it prompted national medical and genetics societies to issue guidelines about the administration of these screens. Continue reading
In 2018, the University of Kentucky Human Development Institute (HDI) received a three-year grant totaling $600,000 from the Administration on Community Living. The project, Wellness Edge, is a Paralysis Resource Center State Pilot program grant. This grant builds connections within local communities to enhance and facilitate access to recreational programs to better serve people with paralysis and their support networks.
Each year, Wellness Edge provides grants of up to $10,000-$24,999 to community organizations that provide organized recreational activities that are intentionally designed to benefit individuals, groups or communities. Wellness Edge is led by a ten-person advisory committee made up of advocates who understand the importance of recreation in the overall quality of life for people with paralysis. Smaller review teams from that group grade the applications and decide on awards. Read more below about each of our subawardees for Year 2 and their proposed programs! Continue reading